Shaping therapies for
rare diseases yourself
CureRare supports patient organizations and researchers on the path to new therapies for rare diseases. We connect patient organizations and researchers.
We coach patient organizations and, if desired, coordinate all necessary steps of a research project. If required, we also provide support in applying for funding.
Not enough research on rare diseases
More than 8,000 rare diseases are known in the world. A disease is considered rare if it affects no more than 5 in 10,000 people.
In the EU alone, it is assumed that about 10% of the population has a rare disease – that is more than 30 million people.
However, only 5% of the known rare diseases have a treatment to date. Research is being conducted on only a few of them. And often the road to research is arduous and slow.
CureRare can change this. We accompany patient organizations on their way to new therapies for rare diseases. And we also offer advice and support for research organizations to set up research projects for rare diseases the right way from the start.
Our offer
We believe that the key to therapy is cooperation between the different stakeholders. To improve this in the different phases of a research project, we offer workshops in which patient organizations and researchers participate together.
Networking
Networking with and among rare disease patient groups
Organization Consulting
Organization consulting for patient groups
Support subsidies
Support with the application process
Research Consulting Patient Management
CureRare takes over the planning upon request.
Workshops
In order to improve different phases, we also offer workshops
Would you like to learn more about CureRare as a patient representative or researcher?
Contact us, we look forward to hearing from you!
Claudio Cinquemani
info@curerare.de
News
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Thank you for the support
The following organizations already support us. We are scholarship holders of the renowned PUSH! scholarship as well as winners of the innovation award of the Gründungsoffensive GO.
