Shaping therapies for
rare diseases yourself

CureRare supports patient organizations and researchers on the path to new therapies for rare diseases. We connect patient organizations and researchers.

We coach patient organizations and, if desired, coordinate all necessary steps of a research project. If required, we also provide support in applying for funding.

Not enough research on rare diseases

More than 8,000 rare diseases are known in the world. A disease is considered rare if it affects no more than 5 in 10,000 people.

In the EU alone, it is assumed that about 10% of the population has a rare disease – that is more than 30 million people.

However, only 5% of the known rare diseases have a treatment to date. Research is being conducted on only a few of them. And often the road to research is arduous and slow.

CureRare can change this. We accompany patient organizations on their way to new therapies for rare diseases. And we also offer advice and support for research organizations to set up research projects for rare diseases the right way from the start.

Our offer

We believe that the key to therapy is cooperation between the different stakeholders. To improve this in the different phases of a research project, we offer workshops in which patient organizations and researchers participate together.


Networking with and among rare disease patient groups

Organization Consulting

Organization consulting for patient groups

Support subsidies

Support with the application process

Research Consulting Patient Management

CureRare takes over the planning upon request.


In order to improve different phases, we also offer workshops

Would you like to learn more about CureRare as a patient representative or researcher?
Contact us, we look forward to hearing from you!

Claudio Cinquemani


21. May 2023

3rd World Congress on Rare Diseases & Orphan Drugs

The 3rd World Congress on Rare Diseases & Orphan Drugs is a premier international event that brings together leading experts and researchers in the field of rare […]
21. May 2023

Clinical Trials In Rare Diseases 2023

This event will explore the challenges in clinical trials for orphan drugs and rare diseases, bringing together clinical operations professionals from across multiple therapeutic areas to […]
21. May 2023

Curating the Clinical Genome

We are pleased to announce the 7th Curating the Clinical Genome conference, which aims to bring together the international clinical genomics and biodata communities to discuss […]

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Thank you for the support

The following organizations already support us. We are scholarship holders of the renowned PUSH! scholarship as well as winners of the innovation award of the Gründungsoffensive GO.